Children with acute and chronic illness
It is every parent's worst nightmare when their child is diagnosed with a chronic illness. Life changes in an instant and becomes centred around medical appointments, procedures, managing daily life and trying to give your child the best quality of life possible as they come to terms with an impactful diagnosis. For the child themselves, this can be an extremely stressful and confusing time as they adapt to significant changes in their life and their health. It may be no surprise that children who have chronic health conditions are at an increased risk of developing psychological difficulties, as are their families and caregivers. Some risk factors for psychological issues include: How much pain the condition causes, How visible the illness is, How much the illness impacts daily life, Any cognitive difficulties experienced. During the process of being diagnosed, and immediately after, the focus is typically on treatment options, appointments, and potentially lifestyle changes. While this is completely normal, we often forget the mental component to any illness, regardless of age. Children may be sitting in appointments with adults talking over them, making decisions for them and feel a complete loss of control over their body and what is happening to them. What to look out for in your child after a new diagnosis: Withdrawal from friends, family or activities they previously enjoyed, School refusal or not participating in the same way at school, Emotional outbursts that seem disproportionate to the situation, or out of character for them, Difficulty or resistance in getting them to participate in appointments or make necessary lifestyle changes, Changes to sleep patterns, Changes to eating patterns, Anxious or racing thoughts, Becoming self-conscious (particularly if their illness is “visible” in any way), Becoming more fearful of other things happening, for example, getting another illness, getting into an accident, losing someone, fearing death, Ruminating on things that happened at the hospital, or mentioning vivid “flashbacks” and struggling to move beyond procedures or experiences in the hospital. You may also notice some of these signs in their siblings or other family members as you all adjust to this big shift in your life. Some tips for supporting your child through a chronic illness: Have age appropriate conversations: It’s important to have conversations that are age appropriate with your child around their illness. Depending on where they are developmentally it can be helpful to use pictures as a way of helping them understand what is happening in their body. For some children it might be helpful to fill in a body outline that can be used as a reference point to discuss from. When our son was diagnosed with a chronic illness, his specialist at the hospital provided us with a drawing of him that showed him exactly what was happening in his body and where. I have placed an example below: Be mindful of “concrete” thinking in children: Depending on where your child is in their development, they may not fully understand certain [...]